Patau¡¯s syndrome (T13): information for parents
This information is for parents whose baby may have Patau¡¯s syndrome. It can help them talk through the next stages of their care with health professionals.
Applies to England
Documents
Details
Patau¡¯s syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:
- what the condition is
- follow-up tests and appointments
- what the outlook for the baby is
- what happens next
- how likely it is to happen in future pregnancies
- where more support and information is available
Refer to how to print digital leaflets if you need to provide a copy of this guidance to people who cannot access the internet.
Updates to this page
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Added translations for Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish and Urdu
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Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE.
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Converted guidance from PDF to HTML and made some slight changes to terminology.
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First published.