Guidance

Patau’s syndrome (T13): information for parents

This information is for parents whose baby may have Patau’s syndrome. It can help them talk through the next stages of their care with health professionals.

• From: NHS England
• Published: 1 April 2012
• Last updated: 25 April 2025 — See all updates

Applies to England

Documents

Patau’s syndrome: information for parents

HTML

??????? ????? (T13): ??????? ?????? ???????? (Arabic)

HTML

????? ???????? (T13): ??-????? ???? ???? (Bengali)

HTML

帕陶综合征 (T13): 家长须知 (Chinese)

HTML

?????? ????????? (Patau’s syndrome) (T13): ???????? ???? ?????? (Gujarati)

HTML

Zespó? Pataua (trisomia chromosomu 13): informacje dla rodziców (Polish)

HTML

Síndrome de Patau (T13): informa??o para os pais (Portuguese)

HTML

???? ??????? (T13): ?????? ?? ??????? (Punjabi)

HTML

Sindromul Patau (T13): informa?ii pentru p?rin?i (Romanian)

HTML

Síndrome de Patau (T13): información para los padres (Spanish)

HTML

???? ?????? (T13): ?????? ?? ??? ??????? (Urdu)

HTML

Details

Patau’s syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:

• what the condition is
• follow-up tests and appointments
• what the outlook for the baby is
• what happens next
• how likely it is to happen in future pregnancies
• where more support and information is available

Refer to how to print digital leaflets if you need to provide a copy of this guidance to people who cannot access the internet.

Published 1 April 2012

Last updated 25 April 2025 + show all updates

1. 25 April 2025

   Added translations for Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish and Urdu

2. 3 February 2025

   Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE.

3. 1 December 2020

   Converted guidance from PDF to HTML and made some slight changes to terminology.

4. 1 April 2012

   First published.